Join the SONG-PKD Delphi paneliclaron
The Standardised Outcomes in Nephrology – Polycystic Kidney Disease (SONG-PKD) initiative is calling on the nephrology community to be part of the SONG-PKD Delphi panel. Round one is now open, get started now by registering your email online.
The Standardised Outcomes in Nephrology – Polycystic Kidney Disease (SONG-PKD) is an international initiative that aims to identify which outcomes in autosomal dominant polycystic kidney disease are important to patients, caregivers, clinicians and other health professionals.
This will inform the development of a core outcome set to be reported in all clinical trials (and other research) involving patients with autosomal dominant polycystic kidney disease. Establishing a core outcome set can help to ensure that trial report outcomes remain important and relevant.
SONG-PKD Delphi panel aims to achieve consensus on the most important outcomes that should be included in the core outcome set for autosomal dominant polycystic kidney disease. This involves completing a Delphi survey, which includes two rounds from July to November 2018 and each survey should take approximately 10 to 15 minutes to complete.
Round one is nopen until early September. All participants will receive a copy of the results.
To join the SONG-PKD Delphi panel, please register your email as soon as possible HERE.