Kidney disease is a significant worldwide public health problem. Acute kidney injury (AKI) and chronic kidney disease (CKD) are linked to high health care costs, poor quality of life, and serious adverse health outcomes.
Despite this burden, kidney disease is often not included in major chronic disease control strategies, presenting an obstacle when engaging with governments to address kidney diseases.
In an attempt to better define the current worldwide state of kidney care for AKI and CKD, and provide policy recommendations for improvements, the ISN launched a global survey project in 2016, the ISN Global Kidney Health Atlas (GKHA), to collect information on the current state of readiness, capacity, and competence for kidney health care delivery in each country and region.
The ISN GKHA is a multinational survey conducted by the ISN to assess current capacity for kidney care. Designed to document the degree to which the six principles of Universal Health Coverage* are available in each country or region, data is gathered on the world status of existing resources, structures, and organizations available to patients with kidney diseases.
The survey was initially administered electronically in 2016 to individuals throughout 130 countries via the ISN’s Affiliated Societies and 10 regional boards. The first global report published in 2017 highlighted kidney disease as a silent epidemic and the neglect of treatment and prevention.
A second, updated ISN GKHA global report published in April 2019, drew attention to the growing burden of kidney diseases and the significant inequities in access to treatment across countries and regions.
*Health Finance, Health Policy, Service Delivery and Safety, Essential Medications and Health Products, Health Information and Statistics, and Health Workforce.
First ISN GKHA issue published in 2017 (JAMA):
Bello AK, Levin A, Tonelli M, et al. Assessment of Global Kidney Health Care Status. JAMA. 2017;317(18):1864–1881. doi:10.1001/jama.2017.4046
Second issue published in 2019 (BMJ):
Bello AK, Levin A, Lunney M, et al. Status of care for end stage kidney disease in countries and regions worldwide: international cross sectional survey. BMJ. 2019;367:l5873. Published 2019 Oct 31. doi:10.1136/bmj.l5873
- Assessment of Global Kidney Health Care Status. JAMA. 2017
Protocol with supplements
- Global Kidney Health Atlas (GKHA): design and methods. Kidney Int Suppl (2011). 2017 Oct.
- Worldwide Preparedness for Kidney Health Care. JAMA. 2017 May 9
UHC (Universal Health Coverage) domains papers
Guidelines, policies, and barriers to kidney care: findings from a global survey. Kidney Int Suppl (2011). 2018 Feb
Global overview of health systems oversight and financing for kidney care. Kidney Int Suppl (2011). 2018 Feb
Global nephrology workforce: gaps and opportunities toward a sustainable kidney care system. Kidney Int Suppl (2011). 2018 Feb
Global access of patients with kidney disease to health technologies and medications: findings from the Global Kidney Health Atlas project. Kidney Int Suppl (2011). 2018 Feb
Global coverage of health information systems for kidney disease: availability, challenges, and opportunities for development. Kidney Int Suppl (2011). 2018 Feb
Global capacity for clinical research in nephrology: a survey by the International Society of Nephrology. Kidney Int Suppl (2011). 2018 Feb
- Status of care for end stage kidney disease in countries and regions worldwide: international cross sectional survey. BMJ. 2019
UHC (Universal Health Coverage) domains papers
- Peritoneal Dialysis Use and Practice Patterns: An International Survey Study. Am J Kidney Dis. 2020 Aug
- Hemodialysis Use and Practice Patterns: An International Survey Study. Am J Kidney Dis. 2020 Aug
- Disparities in end-stage kidney disease care for children: a global survey. Kidney Int. 2020 Sep
The ISN GKHA reports define the current state of kidney disease care, management, and prevention worldwide, and identify key gaps in specific areas and regions.
This information alerts local and international bodies to the initiatives and health care policies needed to improve outcomes.
Future work will include tools and strategies to address regional and national gaps over the long-term.
ISN GKHA media coverage
Discover the impact of the ISN GKHA through global media coverage.
The ISN GKHA data continues to be collected and analyzed from a balanced representation of national nephrology societies, policymakers, kidney foundations, patient organizations, and advocacy groups.
New editions will be released periodically, tracking progress on the state of readiness, capacity, and competence for the delivery of kidney health care worldwide.
The next issue of the ISN GKHA will be released in 2023.
For any inquiries on the ISN GKHA, contact the ISN Research Team at firstname.lastname@example.org.